I have a neuromuscular disease called Myasthenia Gravis. I have had this since Hunter was born (12 yrs) It affects my breathing, swallowing, walking, arm strenght etc. I am in pain every single day. It is a progress disease meaning it progresses as the years go by. I have had several treatments of plasmapheresis and IVIG. My last treatment of plasmapheresis almost killed me and I lost my sight. Thankfully I regained it 24 hours later. I have progressed some more, but the doctor doesn't not want to do a treatment due to the affects of last time. So, he doubled my chemo drug (immunosuppressive) to help this. I also have started an experiemental supplement called Moducare to see if it will help modulate my immune system which is what the IVIG does. My prayer is that my pain will be less and that the supplement and doubling dose of the chemo drug will slow the progression down and I will start to feel stronger. My praise is that I have learned perseverence and patience, loving life simply, enjoying every beautiful sight, and also the correct motive to obedience. Thank you for your prayers...
Stephanie (Baking Homesteader)
3 comments:
I sure do hope you get better soon Miss Stephanie!I hope the medicine starts working.You seem very nice,and you can visit my blog if you want.It's www.homeschoolshutterbug.blogpsot.com
Thanks Kaity!
Prying for you hard Stephanie! I am so encouraged by your good spirit! :) I am sure it is hard for you a lot of days to be in this much pain. Praying that the Lord would ring healing to your body!
Blessings!
~Rachel~
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